4/15/2021 Season Three, Episode TwoRachel Westlake - 2x Survivor of Non-Hodgkin's Lymphoma Diffuse Large B-Cell![]() One of the things that stands out to me about Rachel is the amount of attention she has devoted to her own growth as a person and how it is clearly reflected in how she engages with me and no doubt her clients. This time of year, besides supporting her clients and building her business, Rachel enjoys gardening and hiking. She lives in coastal Northern California with her partner and dog buddy. She enjoys cooking, creating random art, reading, body movement and building a mind-body connection, and being in nature and with loved ones. Rachel has been cancer-free for five years. 0:00:00 How the cancer was discovered 0:07:45 Post-surgery 0:11:30 Re-entering the world 0:19:20 Self-advocacy 0:25:50 Patient advocacy 0:33:00 The power of the patient 0:38:35 Benefit of the patient advocate 0:47:34 Diagnosed again at 35 0:55:00 Adult Follicular Lymphoma 1:01:50 High dose chemotherapy 1:16:13 Powerfully engaging with your physician 1:28:30 Creating ceremony in survivorship 1:39:45 Facing mortality and maladaptive behaviors 1:57:00 Empathy - recorded 3/26/2021 4/8/2021 Season Three, Episode OneCarole Motycka - Stage IV Colorectal Cancer and Living Donor Liver Transplant Recipient![]() I’m really moved by everything Carole has been through and who she’s created herself to be in the face of it. She’s out there advocating for all of us. I so appreciate you Carole. Carole is the mother of four sons and she currently resides in Connecticut with her life partner Michael. She is a co-founder of BLUEM, a Colorectal Cancer patient access space, she’s an Ambassador with Fight CRC as well as The Global Colon Cancer Association, she’s a survivor model for The Colon Club, and her story and advocacy work have been published in many local, regional and national media outlets Find Bluem on Facebook at Blue and on Instagram & Twitter @my_bluem Carole has been cancer-free for three years. 0:00:00 How the cancer was found 0:10:20 Prognosis 0:19:15 Hepatic Infusion Artery Pump 0:28:20 Liver Aneurism 0:35:46 Liver donor 0:45:30 Liver transplant 0:50:30 Multiple birthdays 1:03:20 Colorectal Screening 1:11:08 Tertiary Care Units 1:20:00 My_Bluem 1:24:00 Fully ALIVE with cancer! - recorded 3/19/2021 3/19/2021 Season Two, Episode TenLauren Tarpley - Survivor of Stage 2 Her2+ Breast Cancer grade 3Today’s guest is Lauren Tarpley. Lauren is a Mom, Wife, Baker, Foodie, Carolina born, Bourbon & travel enthusiast! She loves cupcakes & making lists.
As soon s I greeted Lauren, she hit the grounded running and I spent the rest of the podcast just trying to keep up with her. She does not wait for life to happen. Her podcast "Life with Little Ones" is a place for parents to learn about other kinds of families. How to raise more inclusive children and how we all cope with parenting in this pandemic and these times. All kinds of families. Same sex, interracial, interfaith. Conscious coupling or intentionally single parents. Follow on Instagram @blended_kidz & @lifewithlittleones.podcast Lauren is currently in the midst of treatment and as of March 2, 2021 she is cancer-free. 0:00:00 Getting the phone call 0:08:15 Systematic racism in medicine 0:21:40 How you relate to your doctor 0:24:35 Diagnostics & imaging 0:35:10 Lack of genetic testing data for African-Americans 0:43:00 Chemotherapy 0:47:40 AYA (Adolescent & Young Adult) 0:52:45 Receiving diagnosis 0:58:30 Cancer screening & recurrence rate 1:10:00 MRI scans 1:13:00 Origin of cancer 1:18:10 Caner day to day 1:30:40 BRCA gene mutation test 1:40:00 Progressing thru and after treatment 1:47:00 Others not showing up - recorded 01/22/2021 Season Two, Episode Nine![]() Casey’s journey just floored me with what she had to endure and I was deeply moved by the love and presence demanded of her and her family by this seemingly unending diagnosis. Casey is the author of “Finding Your Way Back to Heart Center; cancer treatment ended now what? She’s a cancer survivorship coach: helping women thrive post-treatment, stronger physically mentally & emotionally through her program: A Happier Healthier You. She’s also personal trainer and a cancer exercise specialist. Casey is based out of Chicago and she is a dog mom to a Maltipoo named Lily. Casey ’s been cancer free for 3 1/2 years. Instagram @TheHappierHustle TheHappierHustle.com Facebook Group “Thriving After Cancer Treatment.” 0:00:00 How the cancer was found 0:10:15 Adult with pediatric cancer 0:22:00 Petechiae and bruising 0:32:48 Extracting the bone marrow 0:42:45 Get walking! 0:54:08 IT Chemo infusions 1:01:52 Rehab hospital 1:09:13 All that we take for granted 1:18:55 Chemo-brain 1:25:05 Two years of treatment and then a recurrence 1:30:55 Fever 105°F 1:39:40 Sitting in the uncomfortableness 1:52:10 Twenty more good years 1:57:12 Stem cell treatment 2:14:30 Third recurrence - recorded 04/04/2020 Season Two, Episode Eight![]() Laura is a wife, a mother, a dog owner, a nonprofit development consultant, and a dedicated do-it-your-self-er who loves to spend time with her family, travel, stay up late and sleep in. What really stood out to me in this conversation with Laura is how meticulously she researched every aspect of her treatment options, from her physicians and their treatment recommendations, to her fellow patients as far as what they were glad they did and what they wish they had done differently. Laura has ben cancer-free for ten years. 0:00:00 How the cancer was found 0:15:00 Making your needs clear 00:27:43 Additional opinions 00:34:30 Breast reconstruction 00:45:06 Interviewing your doctor 0:57:20 Side effects 1:04:45 Feeling at home in our bodies 1:10:46 Others noticing our altered bodies 1:15:10 Sharing our experience with others 1:25:30 Choosing a direction 1:29:20 Cancer and being a parent 1:36:25 Lifting each other up 1:40:20 Our unique responses to treatment and procedures 1:47:00 Cancer screening -recorded April 24, 2020 Season Two, Episode Seven![]() Alexandra is a video producer who lives with her family and two dogs in Baltimore. She likes to spend time in the kitchen coming up with new dinner ideas, but someone else will have to make dessert since she cannot bake at all! She also likes to paint and is frequently in search of a creative outlet. Alexandra has been Cancer-free two years. 0:00:00 How the cancer was discovered 0:07:12 Telling her children 0:11:15 Your relationship with your caretakers 0:17:39 Listing her hair 0:26:05 Those who showed up 0:35:20 The unremarkable end to treatment 0:41:25 Frozen vegetables on her feet 0:49:12 Treatment decisions 0:55:15 Bilateral mastectomy 1:05:20 Post-treatment check ups - recorded 4/21/2020 Season Two, Episode SixLee is a retired school teacher, a volunteer and mentor at the Cancer Resource Center of the Finger Lakes for men with prostate cancer. He’s a personal trainer and uses old school/unconventional strength and mobility training, he’s the owner of Der Rosenmeister Nursery, an antique and modern rose nursery, and he lectures widely throughout the Northeast on sustainable rose growing practices. He is married and has two grown children and a grandson.
Season Two - Episode Five![]() Mandi lives in the Austin, Texas area with her husband and their three dogs. She is an artist and a writer with a great love of the outdoors. Mandi has been cancer-free for almost twelve years. 0:00:00 Surprise diagnosis 0:05:00 Treatment 0:15:31 “How can we mourn the thing we didn’t even want in the first place?” 0:19:00 Being the reason everyone around you is trying not to cry 25:54 Spouses addiction 0:28:57 Overhearing her diagnosis 0:34:25 Healing in transparency 0:43:30 Patient guilt 0:53:05 Forgiveness 0:59:04 Supporting other survivors 1:10:15 The benefits of writing 1:21:08 Simply Do and Be 1:29:00 Post-treatment followups 1:39:35 Treatment for the treatment 1:47:09 Having an incurable disease https://www.facebook.com/mandi.chambless - recorded October 21, 2020 Season Two, Episode Four![]() Maria is a geriatric social worker and an academic researcher, a sister and an Auntie, who lives with her wife and their dog in Upstate New York. She is also a founder and moderator of the Facebook group for Lesbian Cancer Survivors and Caregivers, which she started in 2007 during her second breast cancer, when she realized that lesbians were invisible in the existing literature and resources for women with breast and other cancers. Maria has been cancer-free for twelve years. [timestamps will be released soon] - recorded April 21, 2020 Season Two, Episode Three![]() Louise is an artist, administrator and writer from Norwich in the UK. She was originally diagnosed with a rare form of appendix cancer in 2014 and again in 2017. She is currently recovering from her second surgery. 0:00:00 How the cancer was discovered 0:05:19 Louise lands at Basingstoke Hospital 0:10:12 Treatment: Pseudomyxoma peritonei (PMP) & hyperthermic intraperitoneal chemotherapy (HIPEC) 0:14:15 The immediate impact on Louise and her loved ones 0:20:21 Urgency for treatment 0:25:05 Time to let it all in 0:32:19 Cancer awareness 0:40:58 Cancer clichés 0:45:30 Mindset going into surgery 0:50:30 Chemo baths 1:02:50 Finding your way back up 1:08:48 Long-term effects of treatment 1:22:00 How the body communicates with us 1:26:50 Your reality anchor 1:35:41 Removal of the mucinous carcinoma 1:39:40 The power of laughter 1:41:09 Supporting those grieving our diagnosis 1:48:22 The mother of all surgeries 1:52:52 Caregivers 2:01:25 Calling doctors by their first name 2:08:05 Followup scan 2:17:40 Life “extending” surgery 2:22:05 We are not our bodies 2:28:00 Living the only life we have www.PseudomyxomaSurvivor.org https://mypmpexperience.wordpress.com |
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