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1/21/2021 Mandi Chambless - Survivor ofSeason Two - Episode Five Mandi lives in the Austin, Texas area with her husband and their three dogs. She is an artist and a writer with a great love of the outdoors. Mandi has been cancer-free for almost twelve years. 0:00:00 Surprise diagnosis 0:05:00 Treatment 0:15:31 “How can we mourn the thing we didn’t even want in the first place?” 0:19:00 Being the reason everyone around you is trying not to cry 25:54 Spouses addiction 0:28:57 Overhearing her diagnosis 0:34:25 Healing in transparency 0:43:30 Patient guilt 0:53:05 Forgiveness 0:59:04 Supporting other survivors 1:10:15 The benefits of writing 1:21:08 Simply Do and Be 1:29:00 Post-treatment followups 1:39:35 Treatment for the treatment 1:47:09 Having an incurable disease https://www.facebook.com/mandi.chambless - recorded October 21, 2020 Season Two, Episode Four Maria is a geriatric social worker and an academic researcher, a sister and an Auntie, who lives with her wife and their dog in Upstate New York. She is also a founder and moderator of the Facebook group for Lesbian Cancer Survivors and Caregivers, which she started in 2007 during her second breast cancer, when she realized that lesbians were invisible in the existing literature and resources for women with breast and other cancers. Maria has been cancer-free for twelve years. [timestamps will be released soon] - recorded April 21, 2020 Season Two, Episode Three Louise is an artist, administrator and writer from Norwich in the UK. She was originally diagnosed with a rare form of appendix cancer in 2014 and again in 2017. She is currently recovering from her second surgery. 0:00:00 How the cancer was discovered 0:05:19 Louise lands at Basingstoke Hospital 0:10:12 Treatment: Pseudomyxoma peritonei (PMP) & hyperthermic intraperitoneal chemotherapy (HIPEC) 0:14:15 The immediate impact on Louise and her loved ones 0:20:21 Urgency for treatment 0:25:05 Time to let it all in 0:32:19 Cancer awareness 0:40:58 Cancer clichés 0:45:30 Mindset going into surgery 0:50:30 Chemo baths 1:02:50 Finding your way back up 1:08:48 Long-term effects of treatment 1:22:00 How the body communicates with us 1:26:50 Your reality anchor 1:35:41 Removal of the mucinous carcinoma 1:39:40 The power of laughter 1:41:09 Supporting those grieving our diagnosis 1:48:22 The mother of all surgeries 1:52:52 Caregivers 2:01:25 Calling doctors by their first name 2:08:05 Followup scan 2:17:40 Life “extending” surgery 2:22:05 We are not our bodies 2:28:00 Living the only life we have www.PseudomyxomaSurvivor.org https://mypmpexperience.wordpress.com Season Two, Episode Two Laya is an elementary school art teacher who is passionate about working with our youngest artists and she herself is a mixed media artist. Laya has been cancer free for three years. 0:00:00 Going into surgery 0:12:57 Post-surgery recovery 0:25:00 Long-term recovery 0:37:54 Chemotherapy 0:47:25 Allergic reaction to chemo 0:56:35 The impact on our relationships 1:13:50 Managing chemo side effects 1:24:57 Life after cancer - recorded April 8, 2020 Season Two, Episode One - Part One Laya is an elementary school art teacher who is passionate about working with our youngest artists and she herself is a mixed media artist. Laya has been cancer-free for three years. Also, I promised Laya I would give a shout out to NYBRA Plastic Surgery in Great Neck, NY because Laya RAVES about them and their Patient Empowerment Program! 0:00:00 Accidentally discovering cancer 0:11:15 Second opinion at NYU with Dr. Mancuso 0:15:02 Creating her team, Pt 1 0:24:17 Surgery scheduled 0:33:07 Confronted by cancer 0:39:35 Creating her team, Pt 2 0:44:48 Post-treatment shock 0:54:30 Asking for help 0:58:10 "My unicorn tribe" 1:05:33 Emotional freedom 1:16:45 Being our authentic self 1:24:10 Wellness 1:27:07 Surgery Day - recorded April 8, 2020 Season One, Episode Ten DeLa is: A husband A father A musician A brain tumor survivor and A believer! He is the saxophonist for the band slightly stoopid and also leads his own band DELA & Steady Rock Easy 0:00:00 Bringing awareness to others 0:05:08 Symptoms preceding diagnosis 0:09:25 Tunnel vision 0:13:15 Tumor doubles in size 0:16:13 Tumor responds to the threat 0:17:39 Brief synopsis of Bert’s cancer journey 0:24:18 Scott Palmer 0:29:54 When it all hit home 0:33:35 Full frontal bilateral craniotomy 0:39:37 Anesthesia or local anesthetic 0:42: 31 Dela wakes up completely blind 0:45:46 From the O.R. to the Stage 0:50:13 Radiation therapy 0:58:20 The power of music 1:03:19 Nurses our heroes 1:13:21 Dela’s eyesight returns 1:16:08 The blessing of it all 1:21:21 Living fully/On Kilimanjaro 1:28:42 We go it alone 1:37:29 Radiation breakdown 1:43:40 Ringing the bell 1:48:33 Post-treatment follow-up -recorded 04/17/2020 Dela Sax Music slightly stooped Socials @delasaxmusic Season One, Episode Nine Maria is a food creator, a Wellness Mentor, a mother and wife. She has been cancer-free for over two years. Follow Maria on Instagram @holisticlivingwithmaria 0:00:00 How the cancer was discovered 0:14:16 Scan confirms no metastasis 0:18:51 Chemotherapy recommended 0:25:30 Self-advocacy 0:30:36 Being positive verses being authentic 0:33:50 Giving back to the cancer community 0:40:05 Penny Brohn Cancer Center 0:47:10 Recurrence 0:50:59 England’s National Health Service 0:58:05 Holistic medicine 1:09:45 Long-lasting effects of chemotherapy 1:13:30 Possibility of a colostomy 1:14:56 Chemotherapy and neuropathy 1:18:19 Doctor’s making lifespan predictions 1:26:15 Where does cancer come from? 1:32:45 Follow up tests - recorded 06/19/2020 Season One, Episode Eight Jason is Vice President for the Board of Directors of the Cancer Resource Center of the Finger Lakes, and the co-founder of the Colorectal Support Group as well as the Young Adult Support Group, now named “Beth's Group” in memory of his co-founder, Beth Brunelle. Jason has been cancer free for 10 years.
www.crcfl.org 0:00:00 Surgery and life with a shortened colon 0:08:30 Struggles with radiation 0:12:12 “No thanks” to elective surgeries 0:16:48 Life doesn’t just “go on” 0:24:47 Medical procedure anxiety 0:26:14 How a shortened colon effects diet 0:29:55 Prolapse of the stoma 0:33:10 Avoiding public places 0:38:37 Returning to the regular world 0:43:56 Dating with a colostomy 0:55:04 A life of gratitude 1:05:48 Cancer prepared me for the death of my husband 1:11:58 Cancer and covid 1:14:37 The gift of tears 1:19:14 It wasn’t all gratitude 1:27:15 Oral chemo verse intravenous 1:35:50 Surgery reveals a change in diagnosis 1:43:20 Masculinity and treatment Season One, Episode Seven Sara has worked as a professional book editor, a dishwasher, a philosophy professor, a ballet instructor, a waiter, and an English teacher in Slovakia and Lithuania. She’s ordained clergy, an astrologer, and lives in Ithaca, New York, with her beautiful husband, brilliant son, and a slightly above-average pit bull. Sarah has been cancer-free for eight years.
0:00:00 How the breast cancer was discovered 0:07:30 Breast feeding 0:12:18 Surrounding yourself with strong advocates 0:16:02 Loved ones who don’t show up 26:39 Doctors working in tandem 29:00 Chemotherapy 38:30 Eating through treatment! 42:51 Marijuana to manage side-effects 46:44 Chemo-brain and recovery from anesthesia 50:21 Post-treatment elective surgeries 56:26 Misdiagnosed 4x 58:09 Mastectomies and reconstruction 1:03:15 The body and societal norms 1:10:31 Caregivers 1:18:34 Cancer coaches and therapists 1:21:17 Cultural expectations of men & women 1:24:13 Positive thinking or just lucky? 1:28:19 Finding freedom in my diagnosis 1:35:29 Cancer woke me up! 1:42:13 Cancer as a gift? -recorded 3/06/2020 Season One, Episode Six Rosemary lives in the beautiful Finger Lakes Region of New York State and enjoys hiking and riding motorcycles with her husband and best friend. Rosemary is an inquiry, discovering what it is to live life beyond cancer. Rosemary has been cancer-free for 2 1/2 years. 0:00:00 Clinical Trial to postpone surgery 0:10:50 Recurrence/Ileostomy 0:14:20 Community Support 0:17:00 Human touch 0:22:55 Nasogastric Tube 0:25:30 Change in treatment plan 0:30:14 Acceptance 0:43:20 Grief and Shame 0:52:40 Lower Anterior Resection Syndrome 0:59:10 Long-term Survivorship 1:11:21 Allowing the sadness to be 1:17:20 Physically expressing our emotions 1:23:06 Sex after cancer 1:27:41 Self-love 1:35:17 The Hero’s Journey - recorded 2/22/2020 |