Season Two, Episode Eight Laura is a wife, a mother, a dog owner, a nonprofit development consultant, and a dedicated do-it-your-self-er who loves to spend time with her family, travel, stay up late and sleep in. What really stood out to me in this conversation with Laura is how meticulously she researched every aspect of her treatment options, from her physicians and their treatment recommendations, to her fellow patients as far as what they were glad they and what they wish they had done differently. Laura has ben cancer-free for ten years. 0:00:00 How the cancer was found 0:15:00 Making your needs clear 00:27:43 Additional opinions 00:34:30 Breast reconstruction 00:45:06 Interviewing your doctor 0:57:20 Side effects 1:04:45 Feeling at home in our bodies 1:10:46 Others noticing our altered bodies 1:15:10 Sharing our experience with others 1:25:30 Choosing a direction 1:29:20 Cancer and being a parent 1:36:25 Lifting each other up 1:40:20 Our unique responses to treatment and procedures 1:47:00 Cancer screening -recorded April 24, 2020 Season Two, Episode Seven Alexandra is a video producer who lives with her family and two dogs in Baltimore. She likes to spend time in the kitchen coming up with new dinner ideas, but someone else will have to make dessert since she cannot bake at all! She also likes to paint and is frequently in search of a creative outlet. Alexandra has been Cancer-free two years. 0:00:00 How the cancer was discovered 0:07:12 Telling her children 0:11:15 Your relationship with your caretakers 0:17:39 Listing her hair 0:26:05 Those who showed up 0:35:20 The unremarkable end to treatment 0:41:25 Frozen vegetables on her feet 0:49:12 Treatment decisions 0:55:15 Bilateral mastectomy 1:05:20 Post-treatment check ups - recorded 4/21/2020 Season Two, Episode Six Lee is a retired school teacher, a volunteer and mentor at the Cancer Resource Center of the Finger Lakes for men with prostate cancer. He’s a personal trainer and uses old school/unconventional strength and mobility training, he’s the owner of Der Rosenmeister Nursery, an antique and modern rose nursery, and he lectures widely throughout the Northeast on sustainable rose growing practices. He is married and has two grown children and a grandson.
Season Two - Episode Five Mandi lives in the Austin, Texas area with her husband and their three dogs. She is an artist and a writer with a great love of the outdoors. Mandi has been cancer-free for almost twelve years. 0:00:00 Surprise diagnosis 0:05:00 Treatment 0:15:31 “How can we mourn the thing we didn’t even want in the first place?” 0:19:00 Being the reason everyone around you is trying not to cry 25:54 Spouses addiction 0:28:57 Overhearing her diagnosis 0:34:25 Healing in transparency 0:43:30 Patient guilt 0:53:05 Forgiveness 0:59:04 Supporting other survivors 1:10:15 The benefits of writing 1:21:08 Simply Do and Be 1:29:00 Post-treatment followups 1:39:35 Treatment for the treatment 1:47:09 Having an incurable disease https://www.facebook.com/mandi.chambless - recorded October 21, 2020 Season Two, Episode Four Maria is a geriatric social worker and an academic researcher, a sister and an Auntie, who lives with her wife and their dog in Upstate New York. She is also a founder and moderator of the Facebook group for Lesbian Cancer Survivors and Caregivers, which she started in 2007 during her second breast cancer, when she realized that lesbians were invisible in the existing literature and resources for women with breast and other cancers. Maria has been cancer-free for twelve years. [timestamps will be released soon] - recorded April 21, 2020 Season Two, Episode Three Louise is an artist, administrator and writer from Norwich in the UK. She was originally diagnosed with a rare form of appendix cancer in 2014 and again in 2017. She is currently recovering from her second surgery. 0:00:00 How the cancer was discovered 0:05:19 Louise lands at Basingstoke Hospital 0:10:12 Treatment: Pseudomyxoma peritonei (PMP) & hyperthermic intraperitoneal chemotherapy (HIPEC) 0:14:15 The immediate impact on Louise and her loved ones 0:20:21 Urgency for treatment 0:25:05 Time to let it all in 0:32:19 Cancer awareness 0:40:58 Cancer clichés 0:45:30 Mindset going into surgery 0:50:30 Chemo baths 1:02:50 Finding your way back up 1:08:48 Long-term effects of treatment 1:22:00 How the body communicates with us 1:26:50 Your reality anchor 1:35:41 Removal of the mucinous carcinoma 1:39:40 The power of laughter 1:41:09 Supporting those grieving our diagnosis 1:48:22 The mother of all surgeries 1:52:52 Caregivers 2:01:25 Calling doctors by their first name 2:08:05 Followup scan 2:17:40 Life “extending” surgery 2:22:05 We are not our bodies 2:28:00 Living the only life we have www.PseudomyxomaSurvivor.org https://mypmpexperience.wordpress.com Season Two, Episode Two Laya is an elementary school art teacher who is passionate about working with our youngest artists and she herself is a mixed media artist. Laya has been cancer free for three years. 0:00:00 Going into surgery 0:12:57 Post-surgery recovery 0:25:00 Long-term recovery 0:37:54 Chemotherapy 0:47:25 Allergic reaction to chemo 0:56:35 The impact on our relationships 1:13:50 Managing chemo side effects 1:24:57 Life after cancer - recorded April 8, 2020 Season Two, Episode One - Part One Laya is an elementary school art teacher who is passionate about working with our youngest artists and she herself is a mixed media artist. Laya has been cancer-free for three years. Also, I promised Laya I would give a shout out to NYBRA Plastic Surgery in Great Neck, NY because Laya RAVES about them and their Patient Empowerment Program! 0:00:00 Accidentally discovering cancer 0:11:15 Second opinion at NYU with Dr. Mancuso 0:15:02 Creating her team, Pt 1 0:24:17 Surgery scheduled 0:33:07 Confronted by cancer 0:39:35 Creating her team, Pt 2 0:44:48 Post-treatment shock 0:54:30 Asking for help 0:58:10 "My unicorn tribe" 1:05:33 Emotional freedom 1:16:45 Being our authentic self 1:24:10 Wellness 1:27:07 Surgery Day - recorded April 8, 2020 Season One, Episode Ten DeLa is: A husband A father A musician A brain tumor survivor and A believer! He is the saxophonist for the band slightly stoopid and also leads his own band DELA & Steady Rock Easy 0:00:00 Bringing awareness to others 0:05:08 Symptoms preceding diagnosis 0:09:25 Tunnel vision 0:13:15 Tumor doubles in size 0:16:13 Tumor responds to the threat 0:17:39 Brief synopsis of Bert’s cancer journey 0:24:18 Scott Palmer 0:29:54 When it all hit home 0:33:35 Full frontal bilateral craniotomy 0:39:37 Anesthesia or local anesthetic 0:42: 31 Dela wakes up completely blind 0:45:46 From the O.R. to the Stage 0:50:13 Radiation therapy 0:58:20 The power of music 1:03:19 Nurses our heroes 1:13:21 Dela’s eyesight returns 1:16:08 The blessing of it all 1:21:21 Living fully/On Kilimanjaro 1:28:42 We go it alone 1:37:29 Radiation breakdown 1:43:40 Ringing the bell 1:48:33 Post-treatment follow-up -recorded 04/17/2020 Dela Sax Music slightly stooped Socials @delasaxmusic Season One, Episode Nine Maria is a food creator, a Wellness Mentor, a mother and wife. She has been cancer-free for over two years. Follow Maria on Instagram @holisticlivingwithmaria 0:00:00 How the cancer was discovered 0:14:16 Scan confirms no metastasis 0:18:51 Chemotherapy recommended 0:25:30 Self-advocacy 0:30:36 Being positive verses being authentic 0:33:50 Giving back to the cancer community 0:40:05 Penny Brohn Cancer Center 0:47:10 Recurrence 0:50:59 England’s National Health Service 0:58:05 Holistic medicine 1:09:45 Long-lasting effects of chemotherapy 1:13:30 Possibility of a colostomy 1:14:56 Chemotherapy and neuropathy 1:18:19 Doctor’s making lifespan predictions 1:26:15 Where does cancer come from? 1:32:45 Follow up tests - recorded 06/19/2020 |